The Vice President of Public relations is responsible for the development of all strategies for raising the profile of the Putting Rare Diseases Patients First! organization. The Vice President of Public Relations sits on the Board of Directors.
Basis: This is a volunteer position
Key Job Responsibilities:
Primary Responsibilities will include:
The development of effective strategies and tactics to raise the global profile of PRDP
Competencies Required:
Priority Setting
Business Acumen
Leadership skills
Patient and customer Engagement
Decision Making abilities
Organizational Agility
Communication skills
Integrity & Trust
High level of motivation
Compliance
Required Job Qualifications:
- This person must have a background in public relations.
- At least 10 years of relevant public relations experience
- At least 5 years of experience working in a major public relations agency
- Connections with major public relations firms
- At least a first degree (Bachelors) in public relations or other relevant disciplines
- Be self-motivated
- Have excellent written and oral communication skills.
- Excellent command of the English language
- Ability to empathize with rare disease patients and parents of children with rare diseases.
- Ability to take the initiative
- Self-starter
- Require the minimum of supervision
- Integrity and good character are essential for this position
- Ability to make strategic connections to newspaper editors, journalists, public relations firms, and others who can help to raise the profile of the organization
- May have a rare disease, but this is not a requirement for the role. However, the ability to empathize with patients with rare disease is an important qualification
- Retirees are welcomed.
Job Type: Part-time
Salary: $0.00 /year
Experience:
- PR: 8 years (Required)
- public relations: 10 years (Required)
Education:
- High school or equivalent (Preferred)
Work Location:
- Fully Remote
Benefits:
- None
Hours per week:
- 10-19
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